Thursday, November 22, 2012

Thoughts for Thanksgiving

This morning I read an article, When Poor Health and the Holidays Collide, by Toni Bernhard, J.D., and it ignited a trail of thoughts about things for which I am thankful.

I am thankful:
  • for my family's support when I need to rest.
  • that I awoke this morning with minimal pain.
  • for my children, who help me in the kitchen even when it is not a holiday.
  • for the opportunities for health care and support I can access locally.
  • for the woodpecker at the suet cake hanging outside my window, who always is nearby when I need to see a splash of color.
  • for spontaneous happenings that make me laugh.
  • for the warning signs my body gives before I sublux a joint.
  • that I have learned to listen to my body's needs, and am learning to attend to those needs.
  • that I can still type.
I wish everyone a warm, healthy, and happy Thanksgiving!

Tuesday, November 13, 2012

Living with Chronic Pain

It took me a long time to admit that I have chronic pain.  Pain that doesn't end.  Pain that is a constant companion.  Pain that masks new injuries, unless they themselves are more painful than the background noise.

But now that I acknowledge its existence I am learning better how to live with it.  For example, I spent last weekend resting.  After injuring my hands I knew I would need to take it easy, but then was laid flat by a headache.  Two days of nursing my needs for rest left me exhausted, but feeling emotionally okay and ready to face the week.

Then I encountered the poem, Broken, by Angelika Byczkowski, who also lives with EDS.

It helps to know that, when living with a hidden illness and battling chronic pain, we are not alone.  We can be strong, even when we weep.  We can reach out and find others who do understand.