About 18 months ago, when I began an earnest push to get my medical needs under control, one diagnosis bothered me. It didn't make sense to me, and didn't sound right.
I was informed, by the only pain specialist at my local hospital, that the pain in my hip was bursitis and the solution was shots of cortisone. Though what the doctor said was logical, and he was the medical specialist, not me, it didn't FEEL right. Other diagnosis, even from this doctor, made sense, but not this. But he became defensive when I pushed for information and I had to go out on my own to learn more.
The more I researched bursitis, its causes and symptoms, the more I felt I was right. The pain was not constant, and the symptoms varied in ways contrary to what I read were typical. I began asking other specialists what they thought. Unfortunately, the more common response was to ask the doctor I saw first since he knows more than they about bursitis. Since, at that point, I had independently discovered reasons for several problems that he had not considered, or at least suggested, and found non-pharmaceutical relief for these, I no longer trusted him at all.
Then I had a rolfing appointment during one of these pain flare-ups in my hip. When I explained the situation to her, my physical therapist gently analyzed my hip. An amazing weight lifted from me, an "ah-ha!" moment, when she pointed at a spot about an inch away from the pain and told me that was where the bursa sacs are located and they are not inflamed. Turns out I have a recurring muscle knot. The muscle work she did that afternoon relieved the pain tremendously! I have some physical therapy ahead to further relieve the pain and, perhaps, even keep it from recurring.
The more I pursue my needs as an EDSer, the more I learn to reach deep inside my psyche and trust myself. I am thankful I trusted my instincts and refused treatment for
bursitis. It would have been a waste of resources, medical and time,
and all for naught.